Health-Louisiana
|
Hepatitis C
Profile on Louisiana
Founded
Siren to Wail
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Many people do not
realize the great need for comprehensive support services for those
suffering from addiction, either in recovery or in need of recovery.
Healthcare services are often not available to those with the most need,
those in low-income populations, and without health insurance. Those
numbers in Louisiana are some of the highest in the nation. One disease
that is often directly linked to behaviors in addiction, is Hep C.
Hepatitis over 80,000 people in Louisiana. Talking with Timothea, about
these issues, and her commitment to this health problem, it became
evident to me, that overall there is a lack of education and information
by even those of us in the recovering community, and of course the
general public.
Timothea
has provided us with some information to "Pass On" and is working with
us (Thanks
Timothea!!) on our New Orleans SoberJam
event for Alcohol Awareness Month 2003 coming April 19, 2003 to
Lafayette Square Park. She is a very gifted musician with a powerful
message of hope and healing.
Tell me about Siren
to Wail
Siren To Wail is
the only organization statewide
Siren to Wail provides peer counseling
and deploys educational material to those newly diagnosed and/or living
with Hepatitis C. STW offers social services for those seeking help
filling out medical forms, applying for financial aid and in need of
clinical placement. We provide support groups, free/low cost testing,
client counseling and referrals to doctors at no cost to our clients. In
addition Siren To Wail produces
public service announcements "PSAs" for radio and television
Tell me about Timothea
I am a
singer/songwriter from
New Orleans.
I was diagnosed with Hepatitis C a little over three years ago while
singing in a club in Fla. I decided to use my musical talents and
contacts
What
is Hep C?
Hepatitis C is a virus that causes serious liver disease such as
cirrhosis and liver cancer.
Is there a
cure? Are treatments readily available?
Well, that's a tuff
question. There is a treatment out there but I would say that it clears
the virus in about 50 0% of the people. That's great but I would like I
would like to see it higher than that before I can call it a full cure.
We need more research.
What
are the greatest barriers in reducing the illness Hep C brings to those
in Louisiana?
Doctor’s, we don't
have enough of them. More primary care doctors need to be educated about
Hepatitis C and making the right choice of treatment for that
particular that have been educated about Hep C. We need a clinic just
for Hep C like the no aids task force has and we need a way to get
medicade. I had a client that died while waiting for his card. It came
in two days after he passed. The wait is to long.
Does insurance cover this? What if
you need help, and you don't have insurance?
Most insurance
companies covers the meds but it is my understanding that the
co-payments are still high. It’s not easy to get it after being
diagnosed. The meds alone are about $1500 a month. The drug companies
have an indigent program and lots of times I can get the meds from them
for free but YOU MUST HAVE A DOCTOR.
If you don't have
insurance than your up the river with out a paddle basically. I send
people to Charity but it's at least five months before you can get the
first appointment and then it drags out to a year before you start
treatment. What happens a lot of times is that people just give up and
go into denial. Most then continue to drink.
Tell me about your
new project what is it about, and what is your mission and hope?
We have about six
projects in the works right now. Our main mission is providing
awareness but once I got started with the organization I began seeing
all kinds of needs. We are working on awareness concerts in
Baton Rouge
and Lafayette along with getting our PSA’S ( Public Service
Announcements) on both local radio and TV stations.
What inspired you
to start this outreach? Is it only for those in
New Orleans,
or for all of the state?
I had a hard time
getting any information about my new founded disease and then I was
fired for having it. Thus my new founded mission was born. I called it
Siren To Wail because I was called the New Orleans Siren and I wail real
loud. That’s where the name came from.
We’ve been doing
most of our outreach in New Orleans and the surrounding area’s. Our
videos
Have been running
steadily on the local TV stations for about a year now. As of 2003 will
willl be extending our program and PSA”S both statewide and nationwide
What resources do
you provide? What are requirements for those who need help? Is it a
sliding fee schedule, or totally free service?
Our service is free
to the public!
We send out
Hepatitis C informational packages to people or a family member that has
been infected with Hepatitis C. We provide peer counseling for those
newly diagnosed, testing for those at risk, referrals to social workers
to help find placement for the uninsured. We refer people to doctors and
clinic’s and we provide support groups in two different locations. We do
lots of awareness with the media.
About how many
people do you think reach out for help with Hep C, that have or have had
addictions?
Unfortunately about
70%
HopeNetworks, believes partnering and working with groups focused on
addiction related issues as a critical link in reducing the impact of
addiction in our communities, can you share with us your experiences
with those seeking treatment with Hep C, facing barriers in their
recovery from Hep C, due to untreated addiction, or a lack of available
treatment services.
Number
one, a doctor will not treat you for the virus if you are using drugs
or drinking alcohol. They have just recently ok’ed people to get
treatment that are on methadone.
If
you continue to drink it acts like a poison makes the virus multiply
speeding up liver failure. We have to treat the addiction before we can
even begin to treat the Hep C.
Are
people who go to treatment for addictive disorders screened for Hep C?
How do those contacting you know they have Hep C?
It
depends on where they go? Most addicts find out they are positive when
they are trying to sell blood or plasma. We can get you a test for $20
here at Siren To Wail and it is strictly confidential. On March 13 we
are having a free testing day in
New
Orleans
so please spread the word.
Timothea, will be working on
our Health and Wellness committee, if you are interested in getting
involved in this area, please contact us with your name, location,
organization (or interest area), and e-mail and phone number.
Siren To
Wail's Hep C outreach and Support Website
Have you Registered with us yet?
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